Did
you think I had given up??? You would be close. Although the introduction to new food groups in Operation IFO has yet
to happen we have been eating a few
meals together again…well at least for the 3 minutes Riley is at the table.
Riley
keeps me on my toes which means I have to change things up. Often. I usually
offer Riley at least one preferred food choice per day. After all…I don’t want
his system to go into shock. :)
About
a week ago I decided it was time to reintroduce cooking lunch. R used to cook
his lunch two times a week at school. It never transferred home. I know. My
bad. I thought the easiest way would
be to start Riley off with hotdogs. OK…really just the wieners. Having to eat
the bun as well as cooking would have been too much to handle in one meal. For both of us. It actually went better
than I thought. A few vocal outbursts; some intermittent hand-slapping;
otherwise…pretty uneventful.
Today
I decided it was time for another cooking session. Much to my surprise Riley opted
for perogies. Sorta.
Me: For dinner tonight I’ll make you
oyako-donburi*.
R: YES!
(happy as a clam)
Me: So for lunch YOU can make hotdogs or YOU
can make perogies.
R: Thinking…
Perogies. I’M HUNGRY! (NOT)
Me: You want to make perogies? (very surprised but tried not to sound it)
R: NO!!
You can do it!
Me: I'M going to make YOU dinner. YOU can
make lunch.
R: I’LL BE WHINING! TOOOO-GETHER!!!
Me: Sure. We can make it together.
Lucky
for you I got some of it on video. In the beginning I was only going for audio
then thought…WTH! Get it all on tape. I have nothing to hide. Except perhaps
that I was still in my PJ’s.
As
I was watching, some things really stuck out for me. Some are observations
(mostly about me), some are reminders (mostly for me) and some are eye-openers
(again FOR me). The up/downside of video-teaching. Let me explain.
First
the observations:
·
My
voice! I am just getting over a cold. I
usually sound worse. :D
·
Riley is wearing the same t-shirt and shorts. Those are his home clothes. I do wash them regularly.
·
My
monotone voice. I never used to sound that way. I used to be very enthusiastic
and animated. Ok so not nearly as much as my sister *wink* yet waaaay more energetic than now. Why?? Well in Riley
World: The Early Years, we found that Riley was extremely sensitive to the
inflections of a person’s voice. A calm and even sounding demeanour worked
best. At times very difficult when I was tired and stressed out to the max.
·
I
appear to be ignoring much some of Riley’s comments/questions. Ummm…yea.
Busted. Haha! Actually I am trying to prevent an outburst and redirect
his need to perseverate about his displeasure.
·
I
say “Nice job!” and “Good job!”…a LOT!! Positive reinforcement is key in Riley
World. :)
Second
some reminders:
· I should have found out how he cooked perogies at school. How did they drain the perogies? Did they use a strainer, colander, or scoop them out of the boiling water? Easier to transfer learned skills than starting from scratch.
· You will notice G stepping in to help Riley drain the pot. I do the same thing. I see something R may be struggling with/to do and immediately want to help him. We need to let out the apron strings as much as we can.
Last…eye-opener:
·
There
is this thing called echolalia and
it is HUGE in Riley World. I am going to defer to my now IRL bloggy friend
Bec’s post “Understanding Echolalia”
for an explanation. I hope you pop over and read it. It explains a LOT!
When I say Riley repeats things…I mean he really,
REALLY repeats things. Sometimes when a
person (that would be moi) hears or sees the same thing over and over and over AND OVER again, said person begins to ummm...errrr...well...tune/blank out.
For me it has been a survival thing. Listening/watching the same 7 second
sequence of the same show for the 50 bajillionth time over 14+ years……I am only
human.
In the video, when Riley is sitting at the table
and talking about Hansel & Gretel…that is an example of one of those
times. Riley repeats/scripts when he is stressed. He repeats/scripts as a stim.
He repeats/scripts as a conversation starter. Different situations, at
different times yet all for different reasons. Yup. Echolalia in Riley World…a
hard one to figure out and one that I am still learning about.
Oh…I
just about forgot. Here is the video:
Are you working on anything challenging in your World? How's it going???